Trichotillomania Recovery: what does it look like?

Good morning World! 

I am getting ready to begin my 7 day MBSR training this afternoon, and thought I’d like to post this before I disappear for a week. A while back, on the TLCTrichSupport email listserve (sign up at www.trich.org) someone posted how poorly she felt as she had put together some time and then had a bout of pulling. This was my response to her:

 Good Morning! Wanted to jump in here and comment on your flurry of behavior.

You are doing FANTASTIC! And I mean that with my whole heart. Just the fact you put so many days together, had some emotions trigger a bout of pulling, and then the VERY next day are posting about it, tells me loud and clear you are on the road to recovery.

I don’t  use the concept “relapse” in my own process anymore, as it always gave me a feeling of failure. Today I am either “in behavior” or “out of behavior.” From my perspective, I have learned there is a LOT of truth in the following statement for the majority of pullers. That is:

“For most, we do pick and pull on the road to recovery.” 

Probably because it’s a learning curve.

Rarely have I ever seen someone who stopped, and totally stayed stopped, without any “flurries” of behavior emerging here and there, triggered by emotion, situation, illness, stress, whatever… before ultimately learning to fully navigate without pulling. The key to being on the “road to recovery” for me is this:

Celebrate ANY moment in which you are not engaged in pulling. When you do find that you are pulling or have pulled, accept that it is an opportunity to learn more about what triggers you, and areas that might need some work. (Like processing uncomfortable feelings better… or making sure you get enough sleep so you are not sleep deprived, which makes many vulnerable.. . the list can be long! )

You are not “starting over,” as the days you had cannot ever be taken away, you experienced them, knew what it felt like, learned a lot. You even acknowledge what may have brought on this episode! This is all grist for the mill of your life.

For me, a sign of being on the road to recovery is how you treat yourself when you DO pull. Years ago, my first real signs of recovery were when instead of going in a deep depressive cycle (which was the norm – with anxiety eating at my innards), I began to pat myself lovingly on the back while acknowledging this: 

 ”Yup, I did pull, which makes sense because I have a neurological disorder called trich. But LOOK! I put together a bunch of minutes, hours, days, months, WITHOUT pulling. Yes, I pulled for 2-3-4-5 hours last night, but in the last 1,512 hours, only TWO were spent pulling, when before it was blah blah blah. And today I am working to get back on track to the best of my ability.”

This is one of the ways I nurtured myself until I was able to put years together, instead of days or months. I have now pulled my hair 2 times in the past ten years - once the night of 9/11/2001 (I had almost two years pull free then), and once the day after my father died in January of 2007 (this time I had 6 continuous pullfree years).  During the ten years before that, it was a gradual increase of pullfree time, learning tons as I progressed.

Prior to then, I had pulled an average of 2-6 hours every day for twenty+ years, totally entrapped, from the age of 13 – 34.  

So that was my response. 

In closing, I am now totally invested in shortening that recovery timespan for others, through our work at TLC to develop better interventions, treatments, etc. Your support of TLC will make this dream a reality, so I ask you (beg you!) to become a member, make charitable contributions, get involved!  If you want information on all the things we are working on, give me a call at TLC.

Much love,

Christina

Living pull free with Trichotillomania

Good morning World!

How do I stay pull free?

By being conscious of my own willingness. Being accepting and gentle with myself, understanding that the impulses may or may not come, and being willing to deal with them at all times. In fact, the more willing, and consciously prepared I am to respond to them (by not responding at all), the less they invade my life. Period. This took me many years to discover, and my deepest wish is to shorten this learning curve for others, develop language that can transmit the “how to” if you will.

Next week, I will be taking a weeklong training in MBSR, which is short for JonKabat Zin’s Mindfulness Based Stress Reduction. I am taking this, because I think it will be useful in helping me to develop the skills (and language) I am seeking to improve my communication abilities.  The training is from 6:30am until 10pm for 7 days, so in some ways I am dreading it – and in other ways – I cannot wait to do it!

What else -  Alice gave me back my edited manuscrpt for my little meditation book, and I am so delighted! But with the training coming up, I may have to wait to update the corrections. 

Writing this blog, and that little book, has really helped me be more comfortable with the written word, which is incredibly exciting to me!

Okay, here’s to everyone having a great day!

Love, Christina

Trichotillomania and Body Dysmorphic Disorder

Dear World,

Good morning! I woke up at 4am this morning because Jessie, our 8 year old Beagle began barking enthusiastically at what was probably a racoon outside the house. After laying in bed for about 45 minutes, trying to slip back into sleep, I finally got up.

Now I have had my morning coffee, and am starting my day. Couple things come to mind. First, a TLC member forwarded this link to me: it’s about a brain scan study on BDD (Body Dysmorphic Disorder) and I found it quite intriguing. I have a hunch that we have dysmorphic perception problems with trich and skin picking, in that certain hairs are wrong, or alien, or different, a patch of skin a centimeter sqaure becomes a huge landscape, any bump “must” be removed, and this is determined by touch or sight. Why does an eyelash feel as big as a toothpick, and why could I find the SAME hair with my fingers if I lost touch with it? Why did I get such relief when I purged a pore of “unwanted” material?

I think I will try to contact the docs who did this study later today!

Anyway, here is the link: http://www.aolnews.com/health/article/new-research-may-help-those-terrified-by-the-way-they-look/19337346?icid=main|htmlws-main|dl5|link3|http%3A%2F%2Fwww.aolnews.com%2Fhealth%2Farticle%2Fnew-research-may-help-those-terrified-by-the-way-they-look%2F19337346

I hope it works!

What else. TLC is going to be twenty years old in 2011, and we are planning an Anniversary Campaign. We had our first planning committee conference call last night, and I was so delighted. I am hoping that eventually folks all over the country will get involved! Right now, there is room for a couple more people on the planning committee, so if you are interested, pop me an email at Christina@trich.org and I will send you the details on what participating on the committee entails.

Have a great day!

Love Christina

Musings on how having trichotillomania is like having dogs and cats learning to live together within my nervous system…

Hello World!

Today I encourage peace within my nervous system, having learned much from our dogs and cats!

In our home Frankie and Jessie are buddies.

Frankie is a six-toed orange cat with light green sea-mist colored eyes, and Jessie is a Beagle; a bit on the small side, with perfect Beagle markings. In living with them, I have watched as they got to know each other, and the limits that each can live with. Often today (six years later) you will find them sleeping together, or Jessie licking Frankie’s ears. Or Frankie rubbing up against Jessie, gently rumbling with his burbling purr.

All is well in the world.

Now Ben, the Shepherd, and two other cats also live in our home, as do my husband and I. All of us together form a big dance, with the chipmunks, deer, birds, and other local creatures (humans included) as we move in and out of the house throughout the day and night.

And this dance has expanding circles within expanding circles within expanding circles of life, ultimately encircling the very globe we live on…  Am I star stuff? I suspect so. The sun of creation burns vitally in the core of my soul, wrapping through all space and time until back at the center. Without one piece of this inherent dance, I do not think I would exist.  hmmm… musings getting wild there… lol!

But back to Frankie and Jessie. Natural enemies, they were raised together. A one-year old Beagle found a 6-week old kitten moving in. At first, all Jessie the dog wanted to do was nuzzle, chase and pester the kitten, in fact, possibly even eat it. Well! Frankie soon learned that hissing, spatting and batting furiously were useful tools. Thus, ground-rules were quickly identified, boundaries set, and then began the work of getting to know each other. Over time, they got deeply used to each other, settling into the rhythm of daily activity, simply accepting the other’s presence as a fact of life as life is, within the realm of their personal experience

Today, there is a mutual sense of recognition of  “otherness” between them, yet they have become good friends, and are at peace with one another, unless a boundary is crossed beyond a certain point. Even then, they do not ever come to blows. Simply a dismissal, a quick leave-taking, a yip, a hiss, stuff like that. No grudges ever held, and always comfortable when coming together again. Lots of respect on both sides, and even some joking around.

 Jessie is often filled with evident delight when Frankie saunters into the room.

I have learned a lot watching them. In a way their relationship has become a metaphor, teaching me more about my own nervous system and the very body-focused impulses I so hated for most of my early life.

One body, with  conflicting drives, emotions, thoughts, and impulses. Egad –one could hypothesize there’s a slew of “dogs and cats” within!!!

Altering or shifting perspectives often invites different solutions. Taking a look through metaphor, and learning from the natural world, in which living beings are flexible, negotiating and constantly re-evaluating – relationships, can be very useful.

That’s what life is all about – relationships.  Relationships with self, and other, with inner and outer, with the Divine, with the mundane.

Relationship. Whether with oneself, a loved one, a furred, feathered, or scaled friend. Whether with a goal, a dream, a habit or an impulse. Or with a like or dislike, with a sensation, a desire, with a thought form, or a feeling. Or with a disorder, a compulsion, a disease, a pain. It is all about the dynamic interplay of the present moment with all that we perceive through all of our senses.

Ultimately it’s about our internal relationship with the gateways or portals through which we sense (and make sense of) our lives.  ( I have to smile – okay, musing away here…)

Sight, touch, feeling, taste, smell – and our interpretation of this data. But what of thought? Perception? Intuition? The longings of the heart?

The ripple of energy when Spirit flows?

 I have a gut feeling we need more words to identify far more aspects of self that the simple 5 physical senses.

So much of me is not physical – when I look for roots, I find they are not in my biology but in my soul – which is indefinable, unpindownable, ungraspable, and yet far more tangible, real, and constant – than my body, my thought forms, and my feelings.

Yes it is here, sitting in bed, typing this out before I sleep – and the sensory portals are what I have to play with. They are of me, but do not define me. They connect me, but do not interpret me. They are my gateways to you, to life, to the world.

 It is I – who interpret them. From my awareness, perception, soul, spark of divinity – what ever and however oneself can ultimately be defined. ( my guess is we really are indefinable…) But we always try (like I am doing here rather ineptly) – with words as the vehicle for conveying concepts through space and time.

Back to my trich. Like cats and dogs, I found that which was my “natural foe” needed to be honored. Respected. Accepted for its own truth. Not liked, I never said anything about like. Honor – respect, yes. For its power, its bulldoggish persistence, its relentless intrusion on my senses. For its availability, and lure. For its strength and for its mystery. For its trance induction and its wonder – when I found “just the right one.”  For its insidious shaping of my self esteem, my life patterns, my deepest longings to be free.

Acceptance of its role in the unfolding pattern of my life, my thoughts, my drives, my goals.

Do I like the suffering I went through? No.

But I like the person I have become.

Which brings me here to this very moment. It is here that magic happens, and I do not pull or pick.

 I practice being aware.

All the time. (When I remember… lol!)

 It’s a choice:

I have two.

I can practice

Or not practice.

Choosing practice has brought me to this moment.  What was foe has become friend, where there was battle there is now peace. And now, I am connecting with you! And there is nowhere I would rather be.

If I had chosen not to practice this way of life, I would not be here today, sharing with you.  I would be elsewhere in a different story line of creation.

But I am here, and there’s work to do!

With all my heart and soul I yearn for you to experience the gifts of freedom from compulsion. Hopefully – without the degree of suffering – although I know you have each suffered, or you would not be here reading these words.

So did you know that cats and dogs can grow to live in harmony and love?

I have seen it. Lived it, breathed it: in my home, on my pillow, sometimes room barely there for my human head as I get surrounded by my furry friends.  And this human head has hair, and my skin is clear, as I find my nose gently ticked by the flick of a cat’s tail, and my hip kicked by a Beagle’s back leg as she gets comfortable.

Did you know that one can find peace within a nervous system long-wracked by impulses to pick and pull?

I know this to be true.  It’s been a lot of work, but really, really, precious things have come of walking this path.

Have I mused enough?

Good night, and deepest love to you.

Christina

What a busy week!

Dear World,

good morning!

Boy, what a busy week it has been, I am glad to finally be home for a while! After travelling to Wash. DC, and then Miami, I came home for a couple days and then went to Albuquerque, NM.  I went to a wonderful conference put on by the Center for Action and Contemplation, on Following the Mystics and Contemplative Prayer. All major doctines utilize facets of this – with different language for defining it.

As a child of the ’60’s, I have never found the need to define my spiritual relationship with the God of my understanding, but a good friend of mine is a chaplain, and we enjoyed the conference together.

But I am so glad to be home! I want to finish my little meditation book, and I want to get TLC’s supportive text message program up and running. Along with a kajillion other projects.

One thing that did come out of this weekend’s conference, was a deep acknowledgment of how my focus on healing from trich and picking has deeply enriched my spiritual life. More on that later!

The other thing that was interesting about this recent trip, was how bad the weather was. I got stuck in two airports for hours, and in the air the turbulence was really bad at various points. As a woman who spent about 15 years hating flying due to panic attacks in the air, to now experience only minor and fleeting flying discomfort is for me – a miracle!

No pulling, no picking, and now no flying panic attacks. All I can say is I am deeply grateful for being on this path. It is not an easy one, but my life is better in so many ways that I could never have even conceived of years ago!

Okay, I’m at work so need to get busy, but I will write again soon.

Love to you as you read these words.

Christina

If you have trichotillomania and live in Florida…

Dear World, hello!

Well, beginning to get back into the swing of things after all the Holiday hullaballoo, and boy is this year off to a busy start! Today has been busy busy busy, but I wanted to comment on next week’s activities.

I will be flying to the East Coast next week, to attend an Alliance for research meeting at NIMH in Washington, DC, and then I will fly down to Miami for a one-day workshop I’ll be presenting. If you live in Florida, I hope you can join me.

For more information go to http://trich.org/ and click on the Miami workshop.

The truth is, I love doing these workshops. It gives me such joy to share what I know, and simultaneously raise funds for TLC’s important work on all of our behalf.  It’s so much better when I actually have the time to take people through a process, instead of just a session an hour long or so.  And there is so much to share! Even 7 hours is just NOT enough time, but it is a very, very good start.

Please email me if you have any questions!

What else – I just got off the phone with a guy from Mystery Diagnosis – they are thinking of doing a trich-related story. We’ll see! I’ll keep you in the loop if it moves forward.

Okay, back to work…

Love to all, Christina

So if you live in Florida (or anywhere for that matter), and are thinking about attending, I hope you do. I have found that when we get together, it is profound and many things happen that just don’t happen online.

Today – is a good day…

Hello World!

You ARE the world to me, and I am so glad you are here reading.

Okay, update on my communication difficulties – and the report is everything was a smashing success. Not only was I able to speak with my dear friend in a non-confrontational way, I was able to keep the issue free of emotional charge so the conversation was easy, and we resolved the problem! 

And, NO pulling, NO picking, and a solution for the future.

I hope that if you celebrate a cherished holiday at this time of year, it was wonderful and heartwarming. Mine was, I mainly celebrate Christmas, as this is the holiday I grew up with.

Anyway, I just wanted to report in about that emotional obstacle I was experiencing. It’s so odd how it is the littel things that can trip me up… I can handle crisis, lots of multi-tasking, but then have a feeling that I am uncomfortable with? Urgh – the world stops – and I used to run away from any uncomfortable internal state.

I have learned that I will probably be working on expanding my emotional comfort zone for the rest of my life. But it’s worth it, because life is ever so much better than it used to be. I have all my hair, I have clear skin, and things that pushed me over the “frantic feeling” edge a decade ago I can process easily today.  

Okay, that’s all for now, but more soon!

Much love to all,

Christina

Holidays and Hair Pulling…

Good morning world!

Today, I am not so very happy. In the big scheme of things, there are no crises or major fires to put out, and life is very good, but I am a bit distressed so I will write about it. THIS will make sure I don’t build up a charge and end up pulling over it!  (Like I used to do…)

Here’s the conundrum; it is time to have an emotionally difficult talk with a dear one in my life, which can often be difficult for me to initiate. But if I don’t, I will build up an negative emotional charge, and THAT is not good as it eventually leads to unwanted behaviors like pulling and picking, etc.

Even the very thought of the discussion makes me feel quivery, as I have such a hard time with the fear of anger, condescension, abandonment, rejection, conflict of any sort, and yet – I really do know the only way out is to go through this!

I used to run from big feelings, and I used to run from getting my needs met. Now I may take a bit of time to follow through, but I do, because the feeling of centeredness I gain from acknowledging my truth is necessary for me to stay sober, stay pull and pick free, stay okay with who I am and what I am about in my life.

Sometimes, confronting and acknowledging a feeling that might bring up anger in someone else is more scary to me than talking in front of a thousand people – sky diving – mountain climbing – asking for money – but it is the very best way to live my life.

I have found this to be true over and over again in my life!

Someday, I hope that I can address ANYTHING that triggers me, in the current moment, in a way that is positive and loving, but does the job of not letting misunderstandings build up!

I have an old friend who used to say “Yup, we zip into our earthsuits (bodies)  and off we go to class  to learn whatever it is we each need to learn… “

It does make me smile: it used to be gobs worse. In my twenties, I could not for the LIFE of me do the things I can do now. Thank goodness everything has in so many ways become easier. Not always more comfortable, but certainly easier.

Hmmm – interesting morning musings!

Love to all, Christina

Trichotillomania (Hair Pulling) in Ancient Days?

Good morning!

I haven’t posted in a while, and it’s high time that I catch up! It has been a very busy few weeks, wrapping up with me not feeling well the past few days. But – one nice thing about getting sick is the reminder of how good it feels to feel good again.

When I came home from my East Coast trip, we immediately got into the year-end fundraising rush, getting out letters, phone calls, touching bases with TLC supporters. All I can say is this: I am so deeply touched by the willingness of the trich community to support the work that we do at TLC. Thank you from the bottom of my heart!

Then there was Thanksgiving, and then back to work, fleshing out next year’s important programs and setting up calendars to get them rolling. Somewhere in the midst of the past couple weeks I took a day trip up to the De Young Museum in San Francisco with a good friend to see the Treasures of King Tutankhamen exhibit, on loan from the Cairo Museum in Egypt.

Did you know that tweezers were a normal thing to put in tombs with the deceased? And that the upper classes normally removed lots of hair? In fact, it turns out that NO body hair was allowed in certain temples, so priests would shave themselves completely. Even removing eyelashes. Everything!  Very interesting.

Also, when someone died, hair pulling was a sign of grief, and often the mourner would not take care of their hair for a time, marking them as being in grief.

These little bits of unverified info I got from doing a little research once I got home. Why did I look into hair pulling in Pharonic times? Like from 3000 BC to just after the time of Christ? Because of what I found at the Museum.

As I walked through the exhibit I marveled at the fine degree of craftmanship that went into so many of the pieces. What an amazing world view they held about death, and the whole process of helping the being continue in the ”After” life. I don’t understand it as I have never spent much time on Egyptian history, but suffice it to say that the body is prepared a very special way, and put in a tomb with all the physical items they will need in the afterlife. Also included in the tomb are many god and goddess figurines to grant safe passage.

As we got close to the end of the exhibit (there are like ten rooms of treasure!) I came across a large display case with about 5 items in it. Over to one side was an alabaster (white stone) brick, just a bit bigger than what a normal brick nowadays would be, with a little figurine of some deity (god) standing upright on one end. At the deity’s feet, there were heiroglyphs. And on the case was the translation. I copied the whole thing down as I was deeply fascinated. This is what it said about the brick.

Magical Brick of Tuthmosis IV Dynasty 18 reign of Tuthmosis IV 1400-1390 BC

An image atop a magical brick was placed in wall niches of Burial Chambers to ward off dangers from North, South, East, or West. This northern example warned: 

“You who come to pull [my hair] I will not allow you to pull [my hair].

I copied the text off the case exactly as it was written. I don’t know why the “my hair” was in brackets, unless the translators were not sure of the wording, but I still found this absolutely intriguing. So when I got home, I started doing a little research, and found that hair played an incredibly important role in early Egyptian society.

I have alwayed felt there was an archetypal aspect to the behavior, as it has wended its way through so many cultures in so many ways, and often signified great mourning or loss.

My guess is it is a biological marker for the expression of loss, grief, disconnection, some type of processing adjunct for the nervous system in overwhelm. And that this natural wiring can get stuck in a “hic-up” with the result being full-blown trich.  Now don’t ask me exactly what I mean, it’s not that clear to me, either! But I am writing more about this and other musings, in a larger book I am working on.

Well, I have to get ready for work, but I wanted to post this morning! I’d love to know what anyone thinks about this topic.

Much love, Christina

Effective Treatment for Trichotillomania

Good morning, world!

We do have it. Believe it or not, there IS effective treatment. Or, let me rephrase it more correctly – We now have treatment that is pretty darned effective. Problem is, it is hard work for the sufferer, and often uncomfortable. But – it does work. The other problem is few doctors know how to offer this treatment. But this is slowly beginning to change.

I’m in New York City at the moment, for several reasons. To attend the Association of Behavioral and Cognitive Therapy’s annual conference, to give a one-day workshop, and to meet with various TLC members.

Yesterday, at the ABCT conference, I had the opportunity to attend the 5-hour institute on CBT for Trichotillomania and BFRBs presented by Martin Franklin, Ph.D. and Douglas Woods, Ph.D.. They are both true experts in the field, and esteemed members of TLC’s Scientific Advisory Board.

What was wonderful was to see the 40 or so doctors who had come early to sign up for this institute, paying an extra fee on top of an already expensive conference. To watch as they paid close attention to Doug and Marty, asking relevant questions, and having an obvious desire to offer better treatment to their clients.

What was also great was to watch how these two professionals presented models for treating both children and adults, with a lot of overlap, but also some real differences in approach, mostly due to developmental processes as the age groups have such different needs.

Both of them have written books , that are available on www.trich.org and I highly recommend them.

TLC trains professionals, with our Annual Professional Training Institute (PTI). The great news is we are in the process of developing a multimedia “Virtual PTI” that should be ready for distribution in the Spring of 2010.

What was interesting for me, was how my own view of the recovery process is somewhat different, simply because I have experienced it from the inside out. There were times in yesterday’s session where I could have clarified things, but didn’t want to butt in to the doctor’s process. Like how the urge changes internally over time. How it really does diminish, when one no longer “feeds” it with reinforcement or emotional power.

Which made me want to get home and work on my own book!  Which I believe will help our community, and also help those that want to help us, by clarifying some of the things that you just cannot know unless you have experienced them.

Gotta get ready for the day!

Much love, Christina